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Sonntag, 22. August 2010

Book Reviews shaking you awake: The Off Season, Harmony and Chi

One of the best (teen) books I have read about females in sports also happens to be a realistic book about a C6 spinal cord injury. It is called The Off Season and it feels like reading about growing up, some combo of Linda and I. D.J. is the youngest sibling and only girl on an individual milk farm that does what most do; the mother works as an elementary principal to bring income to keep the farm afloat. All so cows can get milked twice a day, so that D.J., who kicks ass at softball, never gets to finish a labour day game. Why? Because cows don’t milk themselves.

D.J. fought the previous year to play linebacker on the US high school football team (yes, the boys football team). She is over six foot and plays basketball primarily but both her brothers play college football – it is the way to get an education. D.J.’s boyfriend is the Quarterback of the rival towns' team and the one she sacks in the pre-season scrimmage. D.J. is a linebacker due to skill and hard work, not because she is a ‘token’ female. Meanwhile her friend Amber has come out of the closet as lesbian and due to harrassment lives with her lover. Amber and her lover both work instead of high school, saving up money to drive to a place for a new start.

Suddenly, with a shoulder injury that could affect her basketball, and her brother Win getting a bad blow and being hospitalized D.J.’s life changes. She can still be a linebacker, but the shoulder injury will affect her basketball and basketball is the way to a scholarship to college. Meanwhile, Win, who had a spinal injury is now a parapalegic, but just lies there, refusing to speak, and she has to be the strong one, with her mother injured and her father trying ‘organic’ and turkeys to keep the farm afloat. Days doing homework in Win’s room and nights drying his eyes from his quiet crying. She has decisions about her own life to make, about the sport she loves and fought to play which she has to drop if she wants to play the sport (basketball) which could take her all the way. And in the midst of this, she is dumped by her boyfriend for being ‘too tall’. It is the reality of it all that makes this such a great book. There is no magic solution, only hard choices and just gutting onward.

D.J., like her father and brothers has had a hard life, one where being ignored at school hurts but compared with a mother with a bad back, having to take care of the farm, doing the schoolwork, basketball, football, no money, it is just pain. Right now she needs to be there for both of her brothers, the one who is now a C-6 and the one who has to be told, ‘I’ll take care of it, just go back and play college ball, and play well enough to keep your scholarship.’ A hard life, but one that teaches you how to be tough in ways beyond working hard; how to stand up for friends (like lifting a guy making gay slurs off the floor), how to know you will never be ‘beautiful’ but you ARE, and that is what is. DJ lives the hard life that teaches you how to make hard choices, because no one else can.

And for those of us who grew up with a hard life, looking for a book about sports, or disabilities, or being tall and female, and not puff books about sleepovers and angst over getting the right spring dance dress (like WE would be invited to sleepovers, or have that angst when running wind sprints for an hour every day before school – more like trying not to puke). Wearing old shoes to school with no tread because we couldn’t afford others, and our basketball shoes were treated more precious than our church mary-janes (though parents wanted the latter polished a lot more often). Here is a book for the other 20%+ of us. One book versus thousands, but it is a great book. And helps you know you aren’t alone.

For my mental health I have been reading Harmony by Itoh which was written while he had cancer, and edited in the hospital during prolonged treatment. He died from cancer, having only written two books, but said in this book the things that can never be said, have never been said – and it won the two awards of best Novel for the year Japan.
"resource awareness can go fuck itself. My body isn’t here for the admedistration. It is not here for any of you. It’s only here for me. ‘these tits, this ass, they belong to me’”

A book about Tuan and her teen friend Miach Mihie who sees the referring to youth as ‘resources’, to women’s wombs as ‘resources’ as exploitation. The whole society where honest feeling, expressed openly in a way seen as ‘out of control’ has moral meaning as ‘wrong’ or 'socially unacceptable’ is exploitation. She and Tuan plan to show that their body is theirs alone by starving to death. Tuan wakes to find Miach dead and she is now alone is a society where her acts, her reactions, her health are seen not as a part of HER, but as part of her responsibility to society (eat well or burden society, produce children for the next generation, be a good workers, a good resource!). For a child who was sexual exploited before joining a society of conformity, what difference is there between a man with a gun who tells you he owns your vagina and a Minister of Family, or Minister of Health who says the same? A society where displaying raw emotion was punished as even our reactions are ‘owned’ by the collective?

“A vast wasteland of public correctness and people as resources”

Anyone who has been in the medical system, particularly a female, has learned that certain emotions, over emotion, certain displays of intellect are not acceptable and clamped down on. That illness makes you a property within the medical establishment, things like privacy, or confidentiality end when every nurse knows your chart. Comply or be forced to do so….for your own good.

What then the different between death and the governments, groups, businesses all trying to control and manipulate our will and consciousness? The Utopia we are offered is Harmony, a life without consciousness where we buy, we exercise, we live all according to expectations. It would be Harmony, it would be Utopia, there just would not be an ‘I’.

“It is over life, thoughout its unfolding, that power establishs its dominion; death is power’s limit, the moment that escapes it; death becomes the most secret aspect of existence, the most private’--Michael Foucault.

The first question that plagued me when I became disabled was ‘but what worth will I be to society? Why do I deserve to live, to be supported?’ – this book attacks the idea that had so wrapped itself into me that even in sickness I was trying to be a good ‘resource.’ It is a book that transcends genre, and I will probably take it with me to the hospital. Far better than those watching and ordering I follow Kubler Ross’s stages like a timetable; trying to tell me how I am ‘supposed’ to feel, and what five simple steps billions of deaths will all take (it is a theory, that’s all, one which works for SOME people).

Hard lives, hard deaths. It takes courage to write about them.

And now for something complete different.

I’ve referred to Chi’s Sweet Home before, but seriously, if you have a kitten, and you like cats, then you will like Chi’s Sweet home. It was a TV series with about 100 five minute episodes. Each book manages to put the entire season in one full colour manga book. The viewpoint is of Chi, and while sometimes sad when Chi remembers her mom, and goes looking for her, it is often the impulse fun of kitten. But also sometimes tainted with some ‘grrrr’ toward the guy who took her to the vet (and had the thermometer up THERE). If you get the books before the release date (August 24th for the 2nd book) you get the book for $9.41 which is less than we paid at Comic-con, 33% off and all. (oh, the links here produce no revenue, this is an ad free zone, I just put them there so you can get the best price easily if you decide you want it). The best review for the book is for you to experience it, so here is a ‘episode’ from season 1, when Chi finds the OFFICE with so much to play with, like computer keyboards (I have received many emails with extra letter from people who have had kittens walk across the keyboard during the email).


Everyone who has read these books recommends them. So grab a copy for almost $5 off when you can (that’s almost 55% of Chi’s next book paid for!).

I just want to finish saying a bit about how glad I was to see The Off Season after reading literally over a dozen books from Girl in the Arena to Forest of Hands and Teeth where the female just hangs about waiting for the alpha male to help her, and marry her (add zombies, gladiator, no food, a cone around teens with new mind powers or some other odd future). The young adult fiction for teen girls IS Margaret Atwood’s the Handmaids Tale only without any irony. Why do only men patrol the fence? Why can’t the main character make up her own mind without a guy to lead? Why in the future is there gladiator combat but the women’s league is discounted? Well, that’s just how it is, so learn to look good, be nice and wait for some guy to marry you. If you think I am joking, looking at the HUGE bestselling series The Mockingjay Trilogy, where our heroine Katniss learns that while she has to KILL the other 24 participants. But wait, nice girls don’t DO that. So instead she get a REALLY good stylist and makes a HUGE impression with her dress. And ends up being NICE and friends with two others, and somehow is the survivor without killing anyone (except this nasty girl who was attacking her while she was laying flowers on the grave she made of a child – geez, is this high school, or a battle arena?). The Second book, Catching Fire, has her sucked back in with double the participants (now she has to kill 48 people), except of course she has her super stylist make her have FAB hair and an amazing costume so the TV audience love her and ends up…killing no one….again (I know, a fight to the death against 72 people and she WINS, by having good MAKEUP!!!). It is so popular that there is a home game, so you can play the Hunger Games Strategy Game – you can wear the t-shirt, get the key-chain. Why make hard choices when you can learn to turn that smile and social pressure to be nice into a formula which makes 70 people kill each other and you survive (if only life was like that – IT IS NOT!)?

The new teen books this week included one of a future post disaster (which all the teen books are about), where it is an island of women, who protect against the enemy: MEN. Okay, kind of boring old story that. But wait, our teenage watchers and hunters find an old ruin. I love ruins. And in this one they find things which turn their world upside down. Ready???? They find high heel shoes, and make-up and fashion magazines. Then return to the main village and start to question why they have to do what they do. Yes, the high heel shoes and make up empowers them away from being able to take care of themselves. The book even includes ‘talking points’ for classes. Can you see why after that a REAL life when you have to get up and milk cows even when it is freezing and you might, golly, chip a nail is such a relief! To see a growing woman who actually WANTS something and is willing to fight for it, and that isn’t fighting to be noticed by some guy she will hope will marry her.

I don’t wear nail polish, because between falling down, manual transfers, manual chairs and the rest of disability life, it requires someone professional to put it on, and lasts a few days. Nail polish is nice, it is pretty but I don’t need it to live. Good goth earrings are another story altogether however!

As a weekend relax (for me, using your brain IS one of the greatest pleasures), here is a music video to the Unusuals (the NY police). The first part is a good and nice police officer being blackmailed by a bad guy from his home town, trying to decide what to do, arrest or do nothing. The second part is about the Murder Shop – where in NY, you can go to this shop and get everything from uniforms to ways to kill whoever you want. The Police decide instead of shutting it down to keep it open. However, SO many people come in, and they arrest them that is it just darn depressing, but even when they try to quit, people are begging them for help in murdering someone else (the depressing irony). Lord Lord Lord!

Montag, 2. Februar 2009

If you hate Uke's, then you hate me: disgusting, stereotypical, submissive femme I am.

I have a disease called MSA-c variant AAN, which according to the Vanderbilt Study says on AVERAGE, I should have been dead several months ago. Okay.

Now, due to MSA I have nerve destruction in my whole body, I have organ destruction, heart destruction, and my entire autonomic system is dying just for starts. Yet I am still that female who worked up to five jobs simultaneously while doing my Ph.D. (one 37.5 hour one from Friday 5:00 pm to Sunday/Monday 4:00 am). I ran several times a week, I did 10Ks, I did marathons, I hiked over 1000 miles, I did rock climbing and I did fencing. I was fit, I was extremely powerful, and I was over six feet tall (and thus had men hitting on me ALL day long – some guys like women in charge! As in being picked up or spanked).

Okay, these days, I need a person who is strong, who is powerful and who can understand what is going on with me medically to take care of me. I need a person who even though I THINK I am independent, will ensure I am taken care of. This isn’t the adapted chivalry of today, this is the chivalry of 1930’s; I’d have to progress UP to be June Cleaver. See, I need a strong someone to help me on with my coat, and off again. I need someone to make sure that even if I THINK I am okay, they put their jacket around me (because otherwise I get frostbite). And yes, that is a picture of Gwen. I need a person who says, “Oh are you going down to the store? I have something I need to get, and I'll go just in case you need a hand.” And I say, with my little huff from down in my wheelchair that I don’t need a hand and I am very independent. And they say nothing but follow along and then when I get tired they get me a drink, and they get me the DVD’s down from the top shelf and they pay because I can’t talk without slurring or drooling, and then they do give me a hand to get back. Do you start to see? I like Uke’s and I like reading about people like Gwen because I WANT a place in this world, and right now, the only place I can find it, is in manga, in the Seme/Uke relationship. And that I see Gwen as a girl (as does Linda, and most people) works even better. And yeah, I probably have that 'little bit lost' look on my face, and 'I need to be rescued' and I probably have freaky large eyes.

The problem is that people WANT to see me as the ex-fighter, the still fighter, the about to be fighter. Except in the last 56 hours I almost died nine times; I completely stopped breathing over 21 times, I had four grand mals (we don’t count the minor seizures or partials or ones where I lose speech), I bruised my ribs, tore muscles between my ribs, fell down, bruised my hip bone, and lost parts of speech and time function perhaps permanently. And I have had a de-compensating body off and on every day for a week. So, no there is not going to be the dramatic return, I have taped ribs, I am on pain killers, I wake in pain every 30 minutes for as long as I can remember and I have brain damage, recent brain damage. And my body spiked a fever for no reason this morning which almost killed me. Welcome to the interesting parts of MSA-C variant AAN: this does not include not being able to sweat, or having to hydrate or having my heart not beat correctly most of the time or having a heart ventricle that has atrophied and doesn’t really work, or retention, or losing weight, or the rest of it. Or that fact that without being on oxygen almost all the time I would be dead long ago and have to go between the four levels of oxygen concentration.

I bring that up because I used up a crap-load of energy on writing about Uke’s (not ME, but Uke's who I have no idea why I am interested in) in a post on how Uke’s are able to choose within the freedom of femininity to change roles, change clothes, change everything they want. I used over 45 pictures, with 20 different Seme's and over 28 different Uke's to demonstrate those changes. People didn't like the post. I had to explain over and over again to people who didn’t like the post, and this made me upset. This wasn't, "They don't like my favorite character" but genuinely hurt. Why? So I looked at why I was and then understood that the post was in many way about ME.

The post on Uke's was important to me because before I was ill I had clothes that were for running or working out or training, slightly sexy but functional. When I went into the wheelchair, I went for the corset, the miniskirt, the whole, “I’m a woman, and you better notice me or I’m going stick my boobs in your face!” look. Except that getting ready to go out, which used to take 7-12 minutes took 40 then 90 minutes, then 120 minutes and now 240 minutes sometimes. So getting out the thigh high stockings or getting into a corset for the two hours to go one place before my nap along with everything else, sometimes just isn’t worth it (often). So I’m changing my look again; Victoria Secret hoodies, sexy/gothic tank tops and jeans or joggers. That’s the freedom of being a woman, I CAN change. So now it is simple earrings put in by my home care workers, simple foundation or no make-up at all. And I can leave now in only 90 minutes.

So, if you hate the Ukes, if you hate Gwen, if you hate vulnerable, you hate me. I am the weak individual who needs protecting, I am the person who gets into trouble and needs a strong person to get me out. I need doors opened, drinks opened (sometimes I can’t lift a can of coke). I need someone to hold me when I am scared and when you have a 10-48 hour memory and seizures wipe your mind and you don’t know where you are, you get scared a lot. I need someone to tell me, ‘it’s okay’ and hold me. I AM vulnerable and I will never be able to give back adequately to this person (Linda). She does it because she loves me and because I am vulnerable. I would be HATED by the lesbian groups I was part of in the UK and most here in the US. I am the super-femme who can’t do anything by herself, who has to be reminded when to sleep and then helped into bed. If there is a stereotype for women (except the cooking for one’s partner), I fulfill it. I like getting flowers (it isn’t like I get out a lot), I like getting attention, I like Linda driving me to pet stores so I can play with a pet, which she does, willingly! If there is fun time together or seeing something it is because LINDA created it, LINDA, opened the door and lifted me into the car, LINDA packed my wheelchair, LINDA drove me there, and carried me out, and that is how we go places.

The problem is that I have been the strong one in our relationship, only we reached a point where I COULD still be the strong one....and die, or we could CHANGE. That’s right, we changed roles, so I could live (We were partners, but I had more strength and endurance, and better in emergencies). And I am trying as hard as I can to accept being the weak, helpless, cute but maybe a little clueless femme. Because that is what I am! And I NEED someone who will protect me, who will take me places but let people know, “There is any problem come to me” while letting me know, “It’s okay, I’ve checked your temp and I’ve helped you with your jacket and you can go look around, don’t be scared!” Now that image may make some people VERY uncomfortable, it sure did yesterday with the Uke’s (or maybe it is just that they were maybe guys but looked like girls? In which case, why does that matter?). But that is what I need, and not just in my life, or in my schedule but in the bedroom as well. I need a partner who will carry me to the bed, who will accept and EMBRACE my vulnerability and make me feel sexual for being vulnerable (because being made to feel bad about something you can't help isn't sexy!). Also do you think I LIKE this, or want to be like this? Not really, but I LIKE living so I made a choice: I will be vulnerable, I will be the weak one and love and admire the strength of Linda who protects me because if I don’t, if I don't let myself be weak and Linda be strong...I die.

So, when you talk about how distasteful Uke’s are, or how filling stereotypes or gender roles like this invites abuse, or how Gwen is disgusting or how much you hate her because she is so helpless and her eyes say that she needs to be rescued, you are hating and disgusted by me. Because I need to be rescued, and I need it often. And Linda comes in and rescues me. And I LOVE being rescued because you know what? Being a female means I CAN change and so I can LOVE being action girl and then turn around and LOVE being goth girl and be excited about that and now turn around and LOVE being vulnerable girl. And yes, I don’t speak well, and I get confused and I think I am independent and then need being rescued because I get lost or scared or need to be carried back. And I love it. I love the feel of Linda’s strong back when she carries me into bed. Because that is who I am now. I love that she watches over me, I love that she cares for me, and that means helping me drink, or finding me a straw, or maybe bringing me freaking bon-bons, if you want to imagine that. I love it! Because she is the strong one, and because of HER strength she allows me to BE independent. That’s right ALLOWS ME. Because she COULD let me shower myself and use up all my energy for four hours or come in, over my protests, wash me and then I can go and do a blog; or do some postcards. It is her strength and my acknowledgement of my weakness that lets me have that independence, within her loving care (is that dominance? Or submission? Not to us). So if you hate the Uke’s, and you don’t find them attractive, please don’t tell Linda because, she finds me attractive and I find her attractive. She likes being strong. She likes seeing me when I am happy or excited with some fun she has created, watching me enjoy myself within range her watchful eye.

And right NOW, I wouldn’t have it any other way.
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